
Epilepsy is a chronic neurological condition that causes recurrent seizures due to a temporary disruption of electrical activity in the brain. It is one of the most common neurological disorders, affecting about 0.6% of Australians, or approximately 270,000 people. The prevalence of epilepsy in Australia is estimated to be similar between males and females, with an increase in prevalence as age rises, and the disorder is most prevalent in the 65+ age group. This article will explore the number of people currently diagnosed with epilepsy in Australia, the impact of the condition, and the support available.
| Characteristics | Values |
|---|---|
| Percentage of Australians with epilepsy | 0.6% - 1% |
| Number of Australians with epilepsy | 95,000 - 270,000 |
| Percentage of Indigenous Australians with epilepsy | 1.2% |
| Number of Indigenous Australians with epilepsy | 9,000 |
| Australians who will experience epilepsy at some point in their lives | 3% - 3.5% |
| Australians diagnosed with epilepsy annually | 12,000 |
| Australians hospitalised due to epilepsy in 2018-19 | 31,400 |
| Emergency department visits due to epilepsy in 2018-19 | 20,600 |
| Deaths attributed to epilepsy in 2019 | 1,100 |
| Australians with epilepsy who experience anxiety | ~50% |
| Australians with epilepsy who experience depression | ~33% |
| Australians with epilepsy who can control their condition with medication | ~66% |
| Australians with epilepsy who can control their condition by avoiding triggers | ~66% |
| Australians with epilepsy who may require epilepsy surgery | Small percentage |
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What You'll Learn
- Prevalence: 0.6% of Australians, or 151,000 people, had epilepsy in 2017-18
- Indigenous Australians: 1.2% of Indigenous Australians had epilepsy in 2018-19
- Mortality: Epilepsy causes around 300 deaths per year in Australia
- Diagnosis: Diagnosed with two unprovoked seizures or one seizure with a probability of more
- Treatment: 2 in 3 people with epilepsy can be seizure-free with medication

Prevalence: 0.6% of Australians, or 151,000 people, had epilepsy in 2017-18
Epilepsy is a chronic neurological condition characterised by recurrent seizures, which are caused by a temporary disruption of the electrical activity in the brain. It affects around 0.6% of Australians, translating to approximately 151,000 people in the 2017-18 National Health Survey. This prevalence was observed across both males and females, with a slight increase as age rises. Epilepsy was most prevalent in the 65+ age bracket, with 0.9% of individuals in this category self-reporting an epilepsy diagnosis.
These figures are based on self-reported data, which may underestimate the true prevalence of epilepsy in Australia. It is worth noting that epilepsy is not evenly distributed across all demographic groups. For instance, in 2018-19, 1.2% of Indigenous Australians, or 9,000 people, reported having epilepsy. This is twice the rate of non-Indigenous Australians, highlighting a disparity in the occurrence of epilepsy within different communities in Australia.
Epilepsy is a significant health concern in Australia, with approximately 31,400 hospitalisations related to the condition in 2018-19. The condition also contributed to about 1,100 deaths in 2019. Furthermore, epilepsy is associated with increased risks of injury and mortality, with people living with epilepsy facing a mortality rate two to three times higher than the general population.
The exact cause of epilepsy remains unknown for approximately 6 out of 10 people living with the condition. However, known causes include head trauma, central nervous system (CNS) infections, tumours, strokes, and genetic or developmental conditions. Epilepsy diagnosis is typically made when an individual experiences at least two unprovoked seizures or one unprovoked seizure with a likelihood of recurrence. Treatment options include medication, surgery, Vagus Nerve Stimulation (VNS), and dietary interventions.
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Indigenous Australians: 1.2% of Indigenous Australians had epilepsy in 2018-19
Epilepsy is a chronic neurological condition characterised by recurrent seizures, which are caused by a temporary disruption of the electrical activity in the brain. It is one of the most common neurological disorders, affecting a significant number of Australians. In the context of Indigenous Australians, the prevalence of epilepsy is notably higher compared to the general population.
According to statistics, in 2018-19, approximately 1.2% of Indigenous Australians, or around 9,000 people, were estimated to have epilepsy. This proportion is significantly higher than the estimated prevalence of 0.6% in the overall Australian population during the same period. The higher rate of epilepsy among Indigenous Australians highlights a specific health concern within this community.
The disparity in epilepsy prevalence between Indigenous and non-Indigenous Australians is a cause for concern. Indigenous Australians reported having epilepsy at twice the rate of their non-Indigenous counterparts. This discrepancy could be attributed to various factors, including potential differences in access to healthcare, socioeconomic conditions, or other cultural and environmental influences.
While the exact causes of epilepsy are not always known, it is believed that a combination of genetic, developmental, and environmental factors play a role. In the case of Indigenous Australians, it is crucial to address any underlying health disparities and ensure equitable access to quality healthcare services, including epilepsy diagnosis, treatment, and management. This includes ensuring that Indigenous communities have access to culturally sensitive healthcare services and that healthcare providers are equipped with the knowledge and resources to effectively support Indigenous individuals with epilepsy.
Additionally, the impact of epilepsy extends beyond the individual and affects their families and communities. It is associated with a higher risk of injury, restrictions on certain activities, and potential discrimination or stigma. This underscores the importance of comprehensive support services, not only for those living with epilepsy but also for their support networks. Culturally appropriate support services, education, and training can empower Indigenous communities to better understand and manage epilepsy, improving overall health outcomes and quality of life.
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Mortality: Epilepsy causes around 300 deaths per year in Australia
Epilepsy is a serious neurological condition that affects a significant number of Australians. It is characterised by recurrent seizures, which are caused by a temporary disruption of electrical activity in the brain. While epilepsy is a manageable condition for many, it can also be fatal, with around 300 deaths per year in Australia attributed to the condition. This figure represents a potential underestimation, as some epilepsy-related deaths may not be fully captured in mortality statistics.
Epilepsy-related deaths occur when the condition is the underlying or associated cause. In 2019, epilepsy contributed to about 1,100 deaths in Australia, with the condition listed as the underlying cause in around 235 cases and an associated cause in approximately 850 cases. While age-standardised epilepsy death rates have declined over the past two to three decades, the condition still contributes to a notable number of fatalities.
The risk of death from epilepsy is higher for certain demographic groups. For example, Indigenous Australians have a higher rate of epilepsy-related deaths than non-Indigenous Australians. In 2019, there were 57 deaths of Indigenous Australians where epilepsy was recorded as either the underlying or associated cause. Additionally, death rates are higher in remote and very remote areas and in more disadvantaged communities.
The most frequent cause of epilepsy-related deaths is Sudden Unexpected Death in Epilepsy (SUDEP), which accounts for more than half of all epilepsy-related fatalities. While the exact cause of SUDEP is unknown, it is believed to be associated with respiratory or cardiac arrest during or following a seizure. Other risk factors for epilepsy-related deaths include tonic-clonic seizures, which carry the highest risk of SUDEP.
The high mortality rate associated with epilepsy highlights the importance of effective management and support services for those living with the condition. Organisations like the Epilepsy Foundation and Epilepsy Action Australia provide crucial support, education, and training to help people with epilepsy and their families manage the condition and reduce the risk of seizures and associated complications. Additionally, research initiatives, such as the Australian Epilepsy Project, aim to improve understanding and develop more effective treatments to reduce the burden of epilepsy on individuals and society.
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Diagnosis: Diagnosed with two unprovoked seizures or one seizure with a probability of more
Epilepsy is a serious brain disorder that affects around 1% of the Australian population, or approximately 270,000 people. This figure represents the number of people currently living with epilepsy in Australia, with the Epilepsy Foundation estimating that about 1 in 25 Australians will be diagnosed with epilepsy at some point in their lives.
Diagnosing epilepsy can be complex, and it is typically defined by the occurrence of unprovoked seizures. A seizure is defined as a "sudden burst of electrical activity in the brain," which can cause a range of physical symptoms, from brief lapses of attention and confusion to convulsions and falls. It is important to note that not all seizures are indicative of epilepsy, and there are around 40 different types of epilepsy and epilepsy syndromes.
In Australia, the diagnosis of epilepsy typically follows the occurrence of two unprovoked seizures, or one unprovoked seizure with a high probability of more. This probability is assessed by medical professionals and is based on a range of factors, including the individual's medical history, family history, and the nature of the seizure.
For example, while some seizures may be the result of a specific injury or illness, such as a concussion, head injury, serious infection, or drug overdose, these are generally considered "once-off" seizures and do not indicate epilepsy. On the other hand, seizures that occur without an apparent cause and have the potential to recur are more likely to be indicative of epilepsy.
It is important to note that the diagnosis of epilepsy may vary depending on the specific guidelines and practices of medical professionals in Australia, and there may be additional factors considered in the diagnostic process.
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Treatment: 2 in 3 people with epilepsy can be seizure-free with medication
Epilepsy is a common neurological disorder, affecting around 1% of the Australian population, or 270,000 people. It is characterised by seizures, with varying frequencies and intensities, and is often diagnosed following two or more unprovoked seizures. The exact cause of epilepsy is unknown in many cases, but it can be caused by head trauma, infections, strokes, and genetic conditions. The condition can have a significant impact on daily life, with driving restrictions and limitations on career choices. Furthermore, there is a notable link between epilepsy and mental health issues, such as anxiety and depression.
Treatment for epilepsy aims to control and, ideally, eliminate seizures. Medication is the primary treatment option, and it is highly effective, with two-thirds of patients becoming seizure-free with anti-epileptic drugs. These drugs work by inhibiting neural activity and are prescribed based on individual characteristics, such as seizure type, age, and sex. Carbamazepine, for instance, is a common first-line treatment but is also used for nerve pain. Other medications serve as mood stabilisers (e.g. sodium valproate) or tranquilisers (e.g. diazepam).
In addition to medication, surgery is an option for some patients with epilepsy. Certain types of epilepsy are suitable for surgical intervention, and eligibility is determined through medical investigations. Surgery can significantly reduce seizure frequency, and in some cases, stop them altogether. Epilepsy surgery may involve extensive rehabilitation, and it has been successful in the long-term management of seizures.
The Epilepsy Foundation, established in Victoria in 1964, provides valuable support and resources to people with epilepsy and their families. They offer epilepsy support workers who provide advice and information, as well as assistance with risk management and community resource access. The foundation also develops epilepsy management plans and provides education and training to raise awareness and understanding of epilepsy in Australia. Their work extends to research funding and the development of Australia's national epilepsy strategy, ensuring that those living with epilepsy receive the support and understanding they need.
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Frequently asked questions
It is estimated that around 151,000 people or 0.6% of the Australian population had epilepsy in 2017-2018. This figure increased to 270,000 people or 1% of the population in later estimates.
It is estimated that up to 3.5% of Australians or 1 in 25 Australians will experience epilepsy at some point in their lives.
In 2018-2019, there were 31,400 hospitalisations associated with epilepsy in Australia.
In 2018-2019, around 1.2% of Indigenous Australians or 9,000 people were estimated to have epilepsy. This is twice the rate of non-Indigenous Australians.











































